Brain Cancer Patient, Wife & Mother

Please find knowledge and encouragement about brain cancer from this site - with every step Anna took
in her
4.5 year FIGHT, she continued to help others providing support.  
This site will live on to support her wish to always help others...........
Anna's Story
(as told by 3 of her friends)
To Our Friend Anna -
We just don't know how
else to help.
We can't make it go
July 31, 2007 - In ICU for high level of care; I spoke with her from 5-5:30pm; she talked about being up all
night on Monday night due to cough; a nurse stayed with her the entire time and she finally went to sleep
around 4am; she was in good spirits talking about wanting to get back to work by end of August; slight
speech effect;  her breathing was quick / shallow & constant cough.  She sounded like she had
pneumonia or something effecting her ability to have full lung capacity.  Nurses were questioned about
potential breathing treatment and Scott said that a nurse had talked about the dryness from the oxygen.

July 30. 2007 - In ICU for high level of care; sitting up; eating solid foods; she looks good

July 29, 2007 - In ICU for high level of care; she was doing good; her right hand still weak; right side of
mouth droppy; slight speech effect -- order MRI to rule out stroke

July 28, 2007 - In ICU for high level of care; she was doing good; her right hand weak; right side of mouth
droopy; slight speech effect -- order CT to rule out stroke

July 27, 2007 - 7 hour surgery performed successfully.  Anna will spend 1 night in ICU.  5 day hospital stay

July 25, 2007 - Mastoidectomy scheduled for July 27th at Loyola Hospital along with 6 hrs of
reconstructive plastic surgery.  Radiation treatments performed Jan-Feb 2004 stopped blood flow in the
area.  Plastic surgery will insert veins to re-introduce blood flow to the area.  Anticipated 5 days in the
hospital post-op with 1-2 of them in ICU.

July 24, 2007 - Pathology results received from tumor removed June 26th - diagnosis is sarcoma - a
malignant tumor.  At this time treatment approaches for this needs to be determined collectively.  It is
Anna's understanding that she had already received (in 2004) the maximum amount of radiation possible.
 Perhaps a gamma knife procedure would be called for.  Anna believes that chemotherapy for this
metastasized tumor would not be Temodar as that is only used on primary brain tumors.  Treatment plan
will be determined after release from July 27th surgery.

July 23, 2007 - Staph Infection still present.  Anna to undergo surgery (3rd surgery since June 26, 2007)
later in the week to close up surgical wound behind ear and eliminate staph infection; a plastic surgeon
will be brought into case to perform graft this time.

July 20, 2007 - Dr Leonetti  remove the staples from July 12th surgery - staph infection still present -
applied topical antibiotic dressing and orders Anna to be seen the next 3 consecutive days by his team for
change of dressing.  Told she will be off work for 'an undetermined amount of time'.  Also, if staph infection
is still present on Monday during her visit, she will be admitted to
Loyola Hospital for further treatment.

July 16, 2007 - Dr Leonetti's team remove the drainage tube surgery.

July 13, 2007 - Hospital discharge

July 12, 2007 - Surgery to reopen the incision and clean the infection out of the area.

July 9, 2007 - Anna returned to the Emergency Room at Loyola because the incision was draining blood
and puss.  She was admitted and the draining fluid was tested.  The fat graft that was done in the first
surgery became infected (staph infection) and surgery was scheduled for Thursday, July 12th to reopen
the incision and clean the infection out of the area.

July 6, 2007 - Dr Leonetti's team removed stitches and staples.

June 29, 2007 - Dr Leonetti's team removed the two drainage tubes from the surgery.

June 26, 2007 - Surgery was performed and a biopsy send out.  Results will take about a week.  Anna's
hearing will remain muffled in the right ear.  The pain has been rough, and the pain meds make Anna
sleep most of the day.  Nighttime is hard to get comfortable.

June 26, 2007 - Surgery scheduled at Loyola Hospital - Dr. Leonetti will perform a Lateral Temporal
Bone Resection.  Anna will remain in the hospital overnight.

June 15, 2007 - Dr John Leonetti (Ear Specialist)  - went over the CT Scan with Anna and her mom.  The
results:  Surgery is to be scheduled asap at Loyola Hospital.  There is either a tumor, cyst or radiation
necrosis that is pushing against the nerves and causing the pain and bleeding in the ear.  Anna's hearing
will be lost in the right ear.  Nerve damage will be known after surgery.

May 30, 2007 - Dr Ung (ear, nose & throat Dr).  Saw Dr Ung regarding pain in right ear.  Brought him the 2
recent MRI's to look at.  Wants to see if it will clear up on it's own.

May 29, 2007 - Dr Fang (dermatologist) to remove biopsy stitches. Turns out Anna has Granuloma
Annulare a rash that is an inflammation just under the skin.  There is no know cause for it, nor any
treatment - it will go away anytime up to 2 years.

May 22, 2007 - Dr Fang (dermatologist) - Saw Dr Fang regarding rash on back of hands and arms, chest
and face.  She took a biopsy and will call when results come in.

Continuing to see Dr Benton - she's an incredible help!  Thank you Dr Benton!

April 10, 2007 - See Dr. Rosseau

April 6, 2007 - MRI - no changes.  Enhanced area has gotten smaller!  Ear blockage shows on MRI.

March, 2007 - Antibiotics from an ear infection and 500mg Keppra caused seizures to start up.  
Antibiotic stopped, and Keppra dosage upped to 750mg twice a day.  No more seizures!

Jan 9, 2007 - Appointment with Dr Newman (chemo checkup)

Jan 5, 2007 - NO CHANGE!  3 years and counting!  Dr Rosseau is keeping the 3-month schedule!  Side
affects from Dilantin (anti-seizure med) are a bother (eyesight, balance, tunnel vision, rash)
Dr Rosseau is changes to a new medication called Keppra (500mg twice a day).
Anna & Scott December 2005